dolefruitycup (November 30, 1999 at 12:00 am)

im 16 n i have it ._.'' just left a restaurant after i took my first bite.. sigh...

lefttwtoright (November 30, 1999 at 12:00 am)

We who have TN have always been rejected. The doctors just think we want pain meds or we are just lonley and want attention. If we could just take a TENS unit and hook it to thier faces and turn it on high,then they would know the pain of TN.

ch0828a (November 30, 1999 at 12:00 am)

It's okay, you're among friends who've been there, done that.

JUDYFAN61 (November 30, 1999 at 12:00 am)

i'm so sorry

JUDYFAN61 (November 30, 1999 at 12:00 am)

yes i need help please forgive my comments, i'm sorry this is wwhud please remove those comments

ch0828a (November 30, 1999 at 12:00 am)

Friends, if you have Trigeminal Neuralgia make sure your doctor is focused on treating TN as a major part of their practice. My finacee went through 50 different docs before getting her MVD at Hopkins. One of her prior Brain Surgeons did needle proceedures that did not take. He was a general Brain Surgeon, at JHU they actually have a focus on TV, it is important to find docs that focus on this illness, it makes a HUGE difference. Hopkins, Mayo and other major hospitals focus on TN.

ch0828a (November 30, 1999 at 12:00 am)

I am so sorry to hear you have it. Do you need help finding another place to go? There are folks out here who want to help. My fiancee went through 50 doctors over 5 years in 3 major cities before we learned of Johns Hopkins. You have to find the right doctor for you, let me know if you want help.

wwhud (November 30, 1999 at 12:00 am)

SHE REJECTED ME i HAVE IT

ch0828a (November 30, 1999 at 12:00 am)

Why do you think that wwhud?

wwhud (November 30, 1999 at 12:00 am)

CAROL JAMES IS A JOKE