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klb20052009 (November 30, 1999 at 12:00 am)
My niece age 20 just passed away November 18 from Cystic Fibrosis. We need to work on finding a cure so that no family member has to go through what our family just went through watching her die. Let's get the word out that we need to keep working on finding a cure!
musicluvver0013 (November 30, 1999 at 12:00 am)
My sister has CF. She doesn't have a problem with eating or gaining weight, but I remember when she was first born, she had to have an eating tube, but she also does the vest. She usually doesn't mind doing her "treatments" because she knows she can play on the computer, watch TV, read a book...etc.
I just hope they do find a cure sometime in her lifetime.
jennercav98 (November 30, 1999 at 12:00 am)
Thank you so much for sharing Devon's story. I had no idea what CF was and how it was treated before I watched this video. You have a strong and beautiful little girl! I wish you the best!
beasleyallen (November 30, 1999 at 12:00 am)
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
dime4bag (November 30, 1999 at 12:00 am)
The stomach tube?
Nah, I have one myself and I dont even feel it :)
I have to remember I have it sometimes haha
9mas9 (November 30, 1999 at 12:00 am)
Thanks 4 This Video It Rly Helps ! 2gether Against CF :)
ninjagoalie03 (November 30, 1999 at 12:00 am)
I know how you feel. Before Devon got her feedking tube it was a constant fight to eat. I remember her nurse saying eating should not be a fight. It was probably one of the hardest decisions I ever had to make but she is thriving so much better with the tube and there are less fights. I am glad she got it. She looks great and has put weight on.
ninjagoalie03 (November 30, 1999 at 12:00 am)
No you get used to it.
cfmom2000 (November 30, 1999 at 12:00 am)
I have a son that has CF. We are right now deciding if he needs a feeding tube. Thank you for this video it helps! All we do is talk about eating and how much he is eating. It is driving me nuts!
penrod92 (November 30, 1999 at 12:00 am)
I hate having Cystic Fibrosis...... |
